Information Center for Specific Pediatric Chronic Diseases, Japan

Our center constructed and currently manages the database of specific pediatric chronic diseases. This database contains records of pediatric patients who have received financial support for medical costs from a government-funded, medical aid project for children with chronic diseases. In addition, we have launched a portal website to provide information to patients, their families, physicians and researchers with the goal of developing more effective therapy and improving quality of life for patients and their families.